A Witness’ Perspective

LizSmall 069EDI watched Shawn and Liz struggle with themselves as well as each other, trying to understand what the doctors had just told them. Maddi has Down Syndrome. It was evident there were struggles and success. They struggled with their own demons and conquered them, so they could focus on the struggle that was presented to them.
When Maddi was born I watched all of those previous struggles kind of melt away. I watch a mom and dad fall in love with their perfect, precious Madilynne. They were aware of the new struggles they were about to embark on and put on their very brave faces. I saw them get so tired because they were staying up constantly monitoring Maddi’s oxygen levels. I recall Liz crying to me about how scared for her daughter she was. I was watching a mother burn more than both ends of the candle consumed with worry and anxiety about her daughter’s health. I watched a father tend to the every need of his wife and baby. I saw him struggle with how he was going to make it all work for his family. I saw him struggling with how to provide for Maddi and all her medical needs. Looking back on it now, both Shawn and Liz struggled with all of these things. I watched as they were devastated by what was medically going on with Madilynne. I saw them reach their breaking point but never went over the edge. They dug even deeper and found the strength to continue on their journey. Sure they cried, yelled, and did everything a parent who loves their child would do. What they never did was give up. Every single time they were faced with a struggle, they found their way through and grew stronger and more beautiful as persons. I have also been witness to them educating themselves. They are continuously looking for great creative ways to help Maddi flourish. Shawn has found his reason in life. It is to be an advocate for Madilynne and also, to educate people about Down Syndrome. Shawn is a student, an entrepreneur, a full time stay at home dad, an advocate, a leader, and a teacher. I could go on and on. Liz is a superwoman. Pregnant while having a toddler with Down Syndrome. Then tending to that newborn, being a mom that works, going to appointments, and everything else that goes along with it. They both perform quite the juggling act while keeping all their focus on their wonderful family. Smalls 02 B&W
I now see a family learning from each other, growing stronger as individuals as well as a family. Madilynne is a thriving 4+ year old full of life. They stood together during all their struggles. They supported each other through the darkest times. I cannot wait to be witness to all the spectacular things in-store for this amazing family. They are a true inspiration to anyone out there that’s having struggles of their own. Know you are not alone and you too will find you inner strength.

-Auntie Moe

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